This is my description of wha I felt while going through all the treatments and living my life with this awful disease
Friday, October 5, 2012
Better days....
Ok so when I wrote the last post I was having a horrible day.... obviously! The fact is that I am allowed to have bad days... I do apologize for ranting on my blog!
I went to my endocrine last week and found out that my ACTH levels are still high (which didn't surprise me). She also said that she thought the radiation would have done something by now. Its disappointing to know you have gone through a treatment (like radiation) and it didn't work as well as your doctor thought it would. But moving on... so she decided to change my dosage of cortef to 15m in the morning, 5mg at lunch and 5mg at supper. This is supposed to be helping me to sleep better. We will see!
I wanted to add too for those of you on Pinterest there is a great pinner who posts lots of great information and pictures on there! If you search "Cushings Help" you will be able to find it!
Not to much else to report other than I am now working full time AND going to college part time. I am going to finish my Social Work Diploma and then get my Criminology diploma. It is a bit stressful because I have been out of school for so long but I am hanging in there!
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Hi Stacy - Ouch, it sounds like you've had quite a battle. I had pituitary surgery in Sep 2012 to combat my Cushing's and fingers crossed it looks like it's worked. At 36 I'm a bit older than you but good luck with it all and I hope everything works out. I can really relate to a lot of what you've written and I'll keep an eye out on your blog to see how things come along, Tom.
ReplyDeleteI hope that your surgery works!!! Thank you and good luck to you as well, things are going pretty good for me, I am happy with the progress! :)
DeleteI have a question. You mentioned a lot of pain in your kidneys when this all started. Was that related in any way or was that something completely different? Thanks!
ReplyDeleteAs far as I know it is not related, it could have just been a coincidence. But it started happening right around the time I started getting the other symptoms so I mentioned it in my post anyways. :)
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