After I got home and had a chance to rest, things went pretty smoothly. I moved out of my parents house for the third time about 2 weeks after I got home from the hospital. My parents didn't want me to move out so soon after my surgery. They were worried that I would have another adrenal attack and no one would be there to help me. I just felt that it was something I had to do. I wanted to get back some of the independance that I have lost back. I assured them that I told my roommate all about my disease and that if something wasn't right to call an ambulance. My mom relented and got a bunch of people to move my things because I couldn't pack any of the boxes. I was excited and nervous... deep down I was scared... What if I had another attack and I could get help? But I WANTED to feel like an adult, not akid who lives at their parents. I still seen my mom everyday, she checked on me ALOT, which I loved. It was nice to know that I didn't have to be scared.
I started feeling better and about a month after my surgery I started getting back to normal. My incisions still were sore but I was careful and started doing more "normal" things such as brushing my horse, cleaning stalls, ect. I still couldn't pack water pails and it took me almost half an hour to clean my stall (normally takes 10-15 minutes) but I was determined to do it. My mom was always giving me crap because she said I needed to rest and heal properly.
There were times I wish I had of listened! For example I got it in my head one day while I was brushing Luci in the arena and walking her around that I could get on her... so I had my mom to help me up on her.... after a bit of begging and alot of convincing.....well I didn't quite make it up nefore I got a BRUTAL pain in my stomach... my mom let me down and I was sore for DAYS.... to the point that I could hardly walk! I decided that I would wait a bit longer before I rode her.... all my mom said was "I told you so!"
I started to realize that I had to be patient. I couldn't do the things I used to, I was tired ALOT. I think that was due to the fact that I no longer have adrenal glands, having my body get use to not having them, and also having my body get used to the new medications that I have to take. I had to learn when to rest... if I didn't feel good or was tired it was a bad idea to just push through it. I had to wait until my body was used to this before I could be the tough guy again.
It took MONTHS for me to start feeling better. I was depressed because I couldn't do anything... I felt like I was 80, I could barely walk up my stairs without taking a break, and this feeling lasted for about 6 months. I also had to be very consistient with taking my pills. If I missed one or was late taking one I felt HORRIBLE for a couple days. It isn't a feeling like having a cold or the flu, it is just complete and udder exhaustion, headaches, and well just not a good feeling.
My life has definately changed even more since my last surgery. I have to be more careful. I keep some pills at my house, in my car and a few at work so if I forget to take them I have extras. I can't be as careless as I once was, if I get hurt my body can't make cortisol to deal with the pain and if I don't compensate with pills my body will go into adrenal shock. I also have to carry a needle in my car, just in case I get in an accident or get hurt. Luckily I haven't had to use it yet, but I have to tak it everywhere.... although I must admit that I forget sometimes. My close friends and family have to know when/how to use the needle. It is comforting knowing that my family and friends know what to do in an emergency situation.
My life has changed alot since I had my adrenalectomy both for the good and the bad. The bad changes include haveing to take medications 3 times a day everyday, not feeling good when I am late taking my pills, I have to be super cautious when playing sports, driving, camping etc. so that I don't get hurt. I still get tired alot, and there are days I have absolutely NO energy, but there are days that I feel GREAT, I have lost 20 pounds (which is the most weight that I have lost since I got diagnosed), and I have learned not to take like for granted. I am starting to learn how to embrace life, and live it to the fullest. I am starting to feel healthy again. I decided to start playing baseball again, I have started going to the gym, and I have started to feel comfortable with the way I look. I started going out with friends, and I am starting to realize what I want to do with the rest of my life.
So far things are going great.